Minor Setback

Last night about 10:30 I checked Trent's temperature. It was about 100.4. We had been told that anything above 100.5 we needed to head to the ER. So I uncovered him and let him sit for about 15 or 20 minutes then took his temp again. 102.3! I quickly called the on call PA and got Trent's bag ready. Of course we were off to the ER. We had to drag poor Megan with us. Trent was feeling fine but just had a fever. We knew he would be admitted for IV antibiotics but were hoping it wouldn't last too long. We waited forever in the ER. We were the only ones there and got right in but it took so long to get him up to a room. He had a chest xray to rule out pneumonia and they saw the biggest cancer nodule on the xray but none of the others. I am not putting a whole lot of stock in that until we see a CT scan next to the original scan.

Poor Megan was soooo cold! Plus since Trent is neutropenic we all had to wear masks so he didn't have too. Finally at 4:00 am they got a room and we got him settled. We were so tired! Megan and I came home so Trent could get some rest. We jumped up first thing---okay not really first thing, more like as soon as we could drag ourselves out of bed, to start packing again. I went up to see Trent in the afternoon and he was not looking so good. They had started him on the antibiotics and also two more units of blood. I had to inform the nurse that he had thrush in his throat and then ask the doctor to treat it. I had waited so long to ask a bunch of questions to the doctor but he kind of brushed me off which completely ticked me off. I am getting more and more anxious to get to the Huntsman. This sounds so dumb I know, but the doctors only want to talk to Trent. He is not always with it enough to give them the right answers and I find myself having to tell them a different story than he does. Of course they look at me like I need to be quiet until Trent confirms that they should be asking me not him. AARRGGHH!

His fever almost seemed like it was breaking and then this evening it spiked again. They think it is an infection in the open incision but can't be sure until the culture is back. So at this point it looks like he might be home on Wednesday but there is a good chance it will be Thursday. Just in time to hop on a plane to Utah. Could it be any more difficult?! Yikes! I didn't really say that because with our track record I am sure we could find a way to make it more difficult. We haven't done so good so far.

Trent is really having a hard time the last few days. This morning the nurse called and asked me if I thought he should be on a mild anti-depressant. Uh...YES! I thought they would never ask! It is such an emotional rollercoaster everyday and lately it seems as though the hills are getting harder and harder to climb. Maybe next week he will start to feel a little better and enjoy a couple of days before round two of chemo starts. He really needs a break.