The last few days have been interesting. I have imagined every possible scenario and what my reaction would be to the results of the scans. Funny thing, I never could have predicted what happened today.
On our way down to SLC I was calm, cool and collected. Trent was a ball of nerves. I kept telling him we were going to be fine, hoping that my calmness would rub off on him. As usual the scan took about one minute and then the waiting began. We only had to wait two hours today which was really nice. When Dr. Gouw came in he did not even greet us. He walked right by us to the computer and said, "You gotta see this!" I knew right off it was good. He pulled up the scan and lined it up with last month's scan so we could compare the two. Then he scrolled down through the lungs. As I watched the scan progress I kept biting my lip trying not to cry out loud. I was completely entranced by what I saw. What a difference! Last month the left lung was almost completely white, indicating lots of pneumonia, a partially collapsed lung, and a whole lot of tumor. This time the blackness was beautiful! It looked like a perfectly healthy lung clear up until the tumor. Pooh, the tumor is still there but it is shrinking! There was a big black hole right in the middle of the tumor. Necrosis! Yay! The tumor is dying! At least half of the tumor was black in the middle and that is awesome! There are two other nodules that we couldn't really see before because the tumor was so big. However, each are on the perimeter of the lung and can easily be resected. We don't know yet about the tumor in the pericardium but can only assume it is meeting its demise as well! We will know more after we get the final report tomorrow.
Dr.Gouw was completely shocked by the results. He said he never could have guessed we would have such good results. He gave all the credit to Dr. D'aDamo and the Spanish trial of these drugs. We know better though. :) He said that he never would have thought to use that combination for Trent especially since he had already tried both drugs. He will also be using this combination on other patients now too! Katie and Dr. Gouw were thrilled with how well Trent is doing on this chemo. His labs were fabulous. Katie jokingly said, "What are you doing, eating steak every day?" YES! He is! He has a steak and some potatoes almost every afternoon for a snack. Apparently that does his body good!
The cancer sweats are almost completely gone after I upped the dose of his Lyrica to every day instead of every other day. Thank goodness! That was so difficult for Trent to deal with. Now we just need to keep his innards regular and he will be one happy camper. We are going to try milk sugar and hopefully that will do the trick.
Dr. Gouw was saying that when he looks at a patient's labs they are color coded for low levels or high levels. He said Trent's last labs were a rainbow of colors because they were so messed up. This time almost his entire reading was blue (normal range). He said whatever we are doing needs to continue because whatever it is, it's working! We are going for four more rounds of chemo and then a scan on May 1st.
When we went to infusion for Round 23 we saw a volunteer, Mary Ann, that we had met once before. She and Trent had talked a little about a month ago and she told him her husband was taking her to Walt Disney World. She told Trent she would shout hello to him when she got there. She did better than that! She had Daisy Duck hold a sign that said, "We love you Trent" and took a picture. She then made him the cutest scrapbook page with some of her pictures. How sweet! She told us that she had recently been visiting her son in Tobyhanna, Pennsylvania. She went to a very poor church there that she says has a very passionate congregation. She didn't know my name so she put "Trent and his princess" on the prayer book there. Now every time that church holds Mass, their congregation prays for us. Again, how sweet!
|Trent, Eric (Mary Ann's husband), and Mary Ann|
As we continue on this journey I have to wonder, what are we supposed to be learning? What are we supposed to be doing? Is Trent being spared and for what purpose? I don't know the answers to all of these questions. But there is one thing I do know. Miracles happen. Everyday. I believe we have been granted one today. I BELIEVE IN MIRACLES!!!