We really did get discharged today. We are very glad to be home and in our familiar bed! Trent was sent home on some gangbuster antibiotics that will require a lot of attention from me as they are administered through his port. We had home health come tonight and they will continue to come daily for awhile. That was comforting to me because Diane, the home health nurse, was fabulous and spent a lot of time teaching me about the drugs and the delivery and how to care for the drains in Trent's leg. Thankfully the drains are set to come out Friday-right before the kids come back. I was a little worried that Jonathan might be a little too curious with those! Tomorrow will be spent organizing our new drug regimen and space so that Trent can get around as easily as possible without the risk of falling or getting infection of any kind.
While we were in the hospital a social worker named Steven came to see us. He was so good! He had a nice soothing voice and spent quite a bit of time with us. I would love to talk to him again when we go next. He offered some very good suggestions for us and one that I thought was very interesting. He suggested Trent take up cycling. I thought that was a great idea because that is something he didn't do before and therefore couldn't be compared as "pre-cancer" and "post-cancer". Something to think about.
We also had a couple of visits today from different nurses. The first was one of the surgery nurses. We have only seen her one time but she said she thought about Trent all weekend and just had to bring him a bracelet that says "Sarcoma knows no borders". She was impressed with his determination and wanted to make sure she saw him again. Then we had a visit from Dr. Jones' nurse, Nancy. We have only seen her once also. She too said she couldn't get Trent out of her mind and had to slip in to see how he was doing. Her exact words were, "You have done my soul good to see you today." She had been very worried about him because of the condition he was in when she saw him. But he looks a million times better than pre surgery and is looking better every day.