Trent and I went to see our new radiation oncologist on Thursday. We were very surprised to hear her say that Trent would have to qualify for radiation. She was not sure that IMRT was any better than regular old external beam radiation. She said that she could not distinguish Trent's heart from the surrounding fluid in the left chest cavity and therefore would not be able to safely radiate his heart. WHAT!!!???
I called Dr. Carr's nurse, Jenn, after the meeting to see if anything had changed. I told her that IF we were not going to get IMRT we wanted to do radiation in Ogden, but I also wondered if we needed to fight for IMRT.
That kind of threw us both for a loop and we took the night off to go to a movie. As soon as we sat down Trent started retching. Perfect. I ran out and got him a popcorn bucket, just in case. It was fun but not super relaxing or anything. We go through the motions with tons of questions still lingering as to what is happening next.
Friday I got a call from Dr. Carr and he assured me that nothing had changed. We are still on track. I appreciate the fact that he took time out to call me and chat about the situation a little bit. We will hopefully hear from him this week and get a few more answers.
Trent was able to make it to church today for sacrament meeting. It was nice to see him there but he was in quite a bit of pain. Of course I didn't have medicine for him because he has not been for so long, I didn't think about it. I had to have Zach run home in the middle of the meeting to get meds for Trent. He is slowly getting better but still struggles a bit. He is doing well without the oxygen during the day but uses it at night. His heart rate is coming down a little bit which makes me feel better. I think the biggest thing we are dealing with right now is mental. That is a hard road...and not much fun. I will work on getting some counseling set up this week. Time to decompress...