When we were just about to start the chemo they informed us that there is a nationwide shortage of Doxrubicin, which is one of the drugs Trent is on. In its place, they gave him Epirubicin. It is a similar drug in the same drug family but is not commonly used here at Huntsman. Because Trent does not have a tumor in his brain they decided Epirubicin was a good substitute because it does not cross the brain barrier as Doxrubicin does. It also takes only 1/2 hour to get instead of three hours. BONUS! I, of course, needed all the details and asked for a drug fact sheet on Epirubicin. After I read it I gave it to Trent while I talked to the nurse about it. Trent interrupted us and said, "Hey! We're good! It says here that Epirubicin kills cancer cells so no worries!" Very funny, Trent...I still need all the details!
While I was gone getting my teeth done, Trent talked to Dr. Gouw about the treatment plan. It changes every time we are here! Now we are for sure doing another round of chemo after this (Round 16) and then a scan. If the tumor is responding then we could do as many as three more rounds before surgery. Trent told me that when we changed chemo the last time the number 17 popped into his head. So maybe that will be the lucky number for rounds of chemo. Who knows. The plan will probably change with the next round of chemo.
Lately I am feeling like I would just really like to be done with this already. It has been a very long time and I am ready to move on. In many ways our lives are on hold, but our children keep growing. We have no house, no job, and no certain future. By the time we have those things our kids will be moving out of the house. I have really been praying for patience to endure this trial. Then today on the way to Jonathan's post-op appointment I was listening to a talk on CD by S. Michael Wilcox called "The Fourth Watch". The whole jist of the talk is that our God is a Fourth Watch God. He doesn't race to the rescue with the answer we want the very first time we ask. He comes in the fourth watch, after we have been humbled and have endured, and have learned from whatever it is we are going through. The exception, of course, is in forgiveness. In that instance He is a first watch God, willing to forgive the second we ask for it, however many times that is.
In part of his talk, Bro. Wilcox is recounting the story of the Brother of Jared and the eight barges he built under direction from the Lord. (Book of Mormon, Ether 2) The vessels were built "tight like a dish" so no water or wind could get in them as they crossed the stormy sea. There is more to the story but the part that hit me like a ton of bricks was the fact that the Lord helped the brother of Jared prepare the vessels tight like a dish to withstand the storms that would surely come. The Lord could have simply stilled the storms, but instead He prepared the vessels to withstand the storm. Bro. Wilcox goes on to say that when it seems we are in the fourth watch and the Lord still has not come, it is because He has prepared us beforehand and made our vessels tight like a dish to withstand the storms in our lives. If we had not been prepared, he would surely have stilled the storm in the first watch.
I have listened to this talk several times and gained different things from it each time, but this time I drove down the road struggling to see through my tears wondering how tight is our vessel? It must be pretty tight because it seems like we are in the sixth or seventh watch by now. I can honestly say I KNOW we were prepared for this trial. I can look back at our lives and understand why certain things happened to us at certain times. It was to prepare us for cancer. I don't even dare imagine what cancer is preparing us for. Could there be something worse waiting for us? Or is our suffering meant to give us more compassion for others and to prepare us to be instruments in the Lord's hands? I certainly hope it is the latter!
Something worse? Preparing us to be more compassionate? Either way to live with the ugly memories of these trials are very burdensome in themselves. They have forever changed us, our lives, our course in which we walk... but to see a loving Father in Heaven's hand through them, we can look upward with trust while tears stream down our faces and say, "It is worth all the heartache and pain to known thee. For everything will be made right."
ReplyDeleteHow we love you guys!
Much Love, =)The Mathison's
Holly,
ReplyDeleteYOU are amazing! You give me strength every time I read your posts. You ARE still living life, just not the life you thought you'd be living right now. I loved running into you at Capitol Theater, not only because I love seeing you but because I loved that you were there, amidst all the trials in your life, you find time to LIVE! I love you, Holly, thanks for sharing your insight and experiences. EMily
You were an amazing person before this happened. Your experience reminds me of Joseph Smith when he was in Liberty Jail. The conditions, like cancer, were horrible and his emotional state was weak, but not once did he turn against the Lord. He then recieved the revelation found in D&C 122:7 "that all these things shall give thee experience, and shall be for thy good". Whatever this is to teach you, at least you can be assured that it is for your good. Sending love your way!
ReplyDeleteGod Bless You Guys! That's all I can think to say. Your dish is definitely sealed tight! A friend gave a good, simple analogy in a talk one time that has always seemed to help me with the patience issue. She compared it to riding in a car with a little kid who starts crying because they want something right then and there that you physically can't give to them at the moment. And it's impossible to make them comprehend that they just have to wait until you get home or to your destination. So the comparison is we are often like the little kids, crying to God to answer us now and He is the parent wishing we could just see the big picture as to why we just have to wait.
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